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    • About
      • Our Story
      • Our Vision/Mission
      • Our Team
      • Hope in Focus Ambassadors
      • Pressroom
    • Living with LCA
      • What is LCA?
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      • Community News
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      • Resources
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    News

    0
    By Eve Orcutt
    In News
    Posted October 9, 2025

    Hope in Focus to Host Signature Fundraiser, Dinner in the Dark, Nov. 1 at Foxwoods

    Hope in Focus, a nonprofit organization dedicated to advancing treatments and support for Leber congenital amaurosis (LCA), will host its annual fundraiser, Dinner in the Dark, on Saturday, [...]

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    0
    By Eve Orcutt
    In News
    Posted July 30, 2025

    Volunteer Opportunity: Writer/Editor for Short-Term Project

    We’re in the process of relaunching the Hope in Focus website, and we need the help of a professional writer/editor to support this project. Some sections of the web copy […]

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    0
    By Eve Orcutt
    In News
    Posted June 30, 2025

    Hope in Focus Names Courtney Coates as Executive Director

    Ledyard, CT — [6/30/2024] — Hope in Focus, a nonprofit organization dedicated to supporting individuals and families affected by Leber congenital amaurosis (LCA) and other rare inherited retinal [...]

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    0
    By Eve Orcutt
    In News
    Posted June 4, 2025

    Hope in Focus to Host LCA Family Conference June 20-21

    Ledyard, Connecticut (6/4/2025)—Hope in Focus, a nonprofit dedicated to advancing treatments and cures for blindness caused by the rare inherited retinal disease Leber congenital amaurosis (LCA), [...]

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    0
    By Ben Shaberman
    In News
    Posted November 14, 2024

    LCA5 Gene Therapy Provides Vision Improvements in Clinical Trial

    Nothing is more hopeful or gratifying for the retinal disease community than an emerging or FDA-approved therapy that provides vision to people with advanced retinal disease. Such is the case [...]

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    0
    By Eve Orcutt
    In News
    Posted November 6, 2024

    HIF Announces Location for the LCA Conference 2025

    We are pleased to announce that the 2025 LCA Family Conference will be hosted at the Embassy Suites in Minneapolis, Minnesota, from Friday, June 20 to Saturday, June 21, 2025. […]

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    By Courtney Coates
    In News
    Posted October 24, 2024

    Dinner in the Dark: A Culinary Adventure to Raise Funds Retinal Disease

    Hope in Focus will host its signature fundraising event of the year – Dinner in the Dark – on Saturday, Nov. 2, 2024, at Foxwoods Resort Casino in Mashantucket, CT. […]

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    0
    By Ben Shaberman
    In News
    Posted September 22, 2024

    Théa Forms Sepul Bio to Advance RNA Therapies for LCA10 and USH2A into Clinical Trials

    In December 2023, ProQR sold its sepofarsen (LCA10) and ultevursen (USH2A) programs to Théa, a large European biotechnology company focused on ophthalmology. Théa, through its new dedicated [...]

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    By Eve Orcutt
    In News
    Posted September 3, 2024

    Hope in Focus Awarded a $5,000 RAREis Global Advocate Grant from Amgen

    We are pleased to announce that Hope in Focus has been awarded a $5,000 grant on September 3, 2024, from Amgen through their #RAREis Global Advocate Grant prog ram. This […]

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    By Courtney Coates
    In News
    Posted June 18, 2024

    Hope in Focus Updates from the Association for Research in Vision and Ophthalmology Annual Meeting

    Hope in Focus Director of Outreach and Development Courtney Coates attended the ARVO Annual Meeting on behalf of the organization to learn more about current LCA research to raise awareness […]

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