Supporting the LCA community

We see a cure for blindness

Sofia Sees Hope Vision and Mission

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)(3) patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank you to these organizations

for their ongoing commitment to Hope in Focus.

 
Atsena
MeiraGTx
Opusgtx
Simply Majestic
 

Let’s Get Social!

[fts_twitter twitter_name=SofiaSeesHope tweets_count=4 cover_photo=no stats_bar=no show_retweets=no show_replies=no]

18 hours ago

Hope in Focus
Celebrate the season and support our mission at the same time. When you shop through our fundraising partner, See's Candies, a portion of your purchase comes back to our organization. Your holiday gifts can help us provide resources, programs, and services that strengthen our community.Thank you for shopping with purpose! loom.ly/c9P5uq4 #LCA #lebercongenitalamaurosis #HopeInFocus #blindcommunity #lowvision #visuallyimpaired #inclusion ... See MoreSee Less
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5 days ago

Hope in Focus
What a fantastic evening! Thank you to everyone in our community who came out for the Earth, Wind & Fire concert fundraiser—we grooved all night long!Image and video description: Shots from Earth suite looking down at concert. #LCA #LeberCongenitalAmaurosis #HopeInFocus #BlindCommunity #LowVision #VisuallyImpaired #Inclusion ... See MoreSee Less
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