Supporting the LCA community

We see a cure for blindness

Sofia Sees Hope Vision and Mission

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What is LSA?

What is Leber Congenital Amaurosis (LCA)?

LCA is a rare inherited retinal disease characterized by severe vision loss at birth. While some children are born with little or no vision, others may have significant vision loss in the first few years of life, stable vision for a period of time, and then eventually complete vision loss as the retina deteriorates into total blindness.

What We Do

Founded in 2014 as Sofia Sees Hope, Hope in Focus is a nonprofit 501(c)(3) patient advocacy organization dedicated to generating awareness, raising funds for research, and providing support, education and outreach to the LCA and rare inherited retinal disease community.

Thank you to these organizations

for their ongoing commitment to Hope in Focus.

 
Atsena
MeiraGTx
Opusgtx
Simply Majestic
 

Let’s Get Social!

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2 days ago

Hope in Focus
It's not too late to join us this Sunday to groove with Earth, Wind & Fire! Enjoy VIP treatment in a private suite overlooking the stage, access to a private bar, and an exciting raffle alongside fellow Hope in Focus supporters.Purchase tickets before it's too late! loom.ly/izNp7ygImage description in the comments.#EarthWind&Fire #Concert #Fundraiser #LCA #LeberCongenitalAmaurosis #HopeInFocus #BlindCommunity #LowVision #VisuallyImpaired #Inclusion ... See MoreSee Less
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3 days ago

Hope in Focus
This Giving Tuesday, we’re thinking about all the amazing things your support has made possible—remarkable strides in advancing cutting-edge research, offering vital resources and support, and bringing hope to individuals and families affected by inherited retinal diseases. But there’s still so much more we can do together!This year, we hope to raise $5,000 on this global day of giving. Every dollar given will directly benefit Hope in Focus' mission. Together, we can hasten breakthroughs and transform lives.Choose to donate today: loom.ly/hLuRVuY#GivingTuesday #LCA #LeberCongenitalAmaurosis #HopeInFocus #BlindCommunity #LowVision #VisuallyImpaired #Inclusion ... See MoreSee Less
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